Along with that slump I must say my research efforts have hit a slump as well. Sometimes I just get so frustrated with all of my research efforts. Right when I think I am making headway it seems I take two steps back. Maybe this break will do me good. Within the next couple of months hubby and I are relocating about 4.5 hours away from where we currently live. We just need a change of pace, a new scenery and just to get away from it all for a little while. I am hoping in the coming weeks my zest for my research will return. In the meantime my posts here might be scarce as will my research efforts. No matter how much you love something, sometimes you just need to take a break from it for a while and come back with a new, more focused perspective. My mind has been cluttered with everything over the loss of our granddaughter and our grandson having so many issues as well. I am afraid my research has been suffering and rather than present you all with half hazard sloppy posts and research, I prefer to go at it again with a clear and focused mind. I will still be around and still check in from time to time. If you find my blog and think we might be related please by all means still contact me using the form on this site, I do want to hear from you. It might be a few days before I get around to responding but I will definitely get back with you.
I thought I would take the opportunity to update you on my grandson as well. If you have followed my prior blog before I changed names you will remember I had posted his birth and about him having been born with a Congenital Heart Defect. I would like to elaborate a bit more on his progress as we have had some new things come to light since the last time I blogged about his health.
Some of this may be a recap of earlier info but I felt it would give new readers a better insight into what all has been going on with the little guy.
His name is Skylar Damien. Skylar is a tough little guy. He was born on September 15th, 2013. The minute he was born the nurses were checking him over and the head nurse replied "I have got to go now, he has a very serious heart murmur!" She scooped him up and left for the nursery with him immediately. We were not prepared for what followed. Skylar was born with a Congenital Heart Defect called Tetraology of Fallot with Absent Pulmonary Valve. Skylar has a condition called 22q11.2 Deletion Syndrome, sometimes called DiGeorge Syndrome. He underwent open heart surgery during the first few weeks of his life. He has a trachestomy in place in order to breathe. His system does not absorb proteins as it should. A recent MRI revealed that his brain is significantly smaller than it should be for his age. The way they explained that it means that he will likely be slow or developmentally delayed. He is 9 months old now and is a fiesty little fellow. He has such a strong will and determination. He has been in the Cardiac Intensive Care Unit since his birth. It is highly unlikely that he will be released to come home anytime soon. We ask for continued prayers for him, he is already a miracle baby that has made great progress in spite of the odds that were seemingly stacked against him.
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